As requested, some recommended reading in the form of a book called ‘Tictionary: A Reference Guide to the World of Tourette Syndrome, Asperger Syndrome, Attention Deficit Hyperactivity Disorder and Obsessive Compulsive Disorder for Parents and Professionals’ by Becky Ottinger.

The second half of the video is some important advice to all parents and carers of any children who suffer from rage attacks. I speak from experience as the sufferer. (When I say ‘for the rest of their lives,’ from my own personal experience I obviously can only say ‘for many years’ but it has had a deep impact on my and keeps haunting me when I feel really down.

Sorry the lighting isn’t very good and that my head is half cut off!

None of my videos are for sympathy, just for education.

This is not a comedy. If you are looking for something to laugh at, please go elsewhere.

If you have any (polite, respectful, genuine, mature) questions, please go ahead and ask and I’ll do my best to try and answer them for you :)

Duration : 0:5:6

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I’ve wanted to do this for a while - a visual represenation of what I feel (not see) all the time and how I touch things (or ‘distance touch’ things - see videos ‘Complex phantom tics’ and ‘Synesthesia relating to Tourette’s’) in order to ‘even things up’ and try to get rid of the ‘patches of tension’ (phantom tics).

Please note: this is an overly-simplified version. It’s far, far more complicated (and uncomfortable) than balancing circles!

I would have done a much better job of showing the ‘patches’, but this is as good as my video editing software will allow me to make it.

(But why did I do it on an Airwolf DVD boxset? lol)

This is not a comedy. If you are looking for something to laugh at, please go elsewhere.

If you have any (polite, respectful, genuine, mature) questions, please go ahead and ask and I’ll do my best to try and answer them for you :)

Duration : 0:0:46

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There’s always someone else

Just another video of me blathering on about tics and stuff lol

This time I’m saying thank you to the two people who told me that they ‘distance touch’ things too and telling everyone that there’s probably always at least one other person who has the same odd tic/compulsion as you and that you are not alone!

Now that I’ve said that, there’s not much point in the video! lol

This is not a comedy. If you are looking for something to laugh at, please go elsewhere.

If you have any (polite, respectful, genuine, mature) questions, please go ahead and ask and I’ll do my best to try and answer them for you :)

Duration : 0:2:31

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Tonic, clonic, dystonic

Sounds like an advert for floor cleaner!

It’s actually a video with descriptions and demonstrations of tonic, clonic and dystonic motor tics.

This is not a comedy. If you are looking for something to laugh at, please go elsewhere.

If you have any (polite, respectful, genuine, mature) questions, please go ahead and ask and I’ll do my best to try and answer them for you :)

Duration : 0:2:49

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Walking tic

Occasionally when I’m walking I get a tic like this.

This is not a comedy. If you are looking for something to laugh at, please go elsewhere.

If you have any (polite, respectful, genuine, mature) questions, please go ahead and ask and I’ll do my best to try and answer them for you :)

Duration : 0:0:13

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Relaxed - no tics (well, almost!)

This is the day after the video about tic increases after watching the documentary ‘Teenage Tourette Camp’.

It’s the morning, I am feeling relaxed and I have very few tics. My breathing is deep and even - no chest or breathing tics here (as far as I remember and as far as I can see from the video).

None of my videos are for sympathy, just for education.

None of my videos are comedies. If you are looking for something to laugh at, please go elsewhere.

If you have any (polite, respectful, genuine, mature) questions, please go ahead and ask and I’ll do my best to try and answer them for you :)

Duration : 0:0:47

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Complex phantom tics

Phantom tics are sensory tics projected by the brain onto external surfaces. The feeling is releived by touching the surface.

In this video I attempt to show, using MOVEMENT, what is happening in my HEAD (in other words these are NOT TICS I DO) to neutralise the feeling the projected sensory tics give and how I have developed tics to prevent the need to touch things or move my hands in this way. Just to emphasise, these are not tics I do ‘out loud’, as in you won’t see me sitting here doing this in real life. This is purely an illusatration.

The fist half of this video shows what I call ‘distance touching’ tics. This is where I move my hand in front of an object I feel the need to touch, thus ‘touching’ it from a distance.

Firstly, a brief bit of background information. When I was little, I had to touch things to make them ‘feel right’, to get rid of the building up feelings of tension that come with Tourettes/OCD.

When I realised this was noticable, impractical and embarassing, I managed to manipulate these tics into ‘distance touching’, where with an (eventually) automatic series of moving my hand or fingers in front of the object I felt the need to touch, and making movements with my tongue inside my mouth, I could do a similar thing while combining it with normal movements such as touching my nose, rubbing my eyes or stretching.

This method has gradually evolved to involve moving my head and nose, and doing all sorts of other things that I’m barely aware are involved in the same process (that is, they feel like separate tics), all to get rid of these ‘patches of tension’.

However, if these coping, hiding mechanisms are taken away, I’m left with my original method of using my hands.

The first half of this video shows what would probably happen now if I had not developed coping mechanisms and hiding methods to remove these ‘patches of tension’.

Please note:
- I cannot see these ‘patches of tension’ they are internal feelings (sensory tics) projected by my brain onto external surfaces.
- I know the patches are not really there.
- I know it is weird, sick, embarassing, disgusting etc. but this is something I cannot help.
- At the time of filming, I was tired, going through a stage when they’re at their worst and on my own, so this is about as bad as they’d get. They didn’t even slow down for the camera.
- THESE ARE NOT TICS I DO NOW. They never used to be as intense as this either, so I never used to do this the whole time, just tiny, hidden movements here and there.
- The fact that the ‘patches of tension’ ’stick’ to my fingers and get moved around makes it worse. I don’t think they use to do this so much.
- The movements do not really require thought - my hands move as ‘necessary’, but they do require brain power as I also mentally manipulate the ‘patches’ to move them/make them go away.

The reason I am doing this, even though this is not the tic as such is to try to illustrate why my brain is so busy with useless stuff (I can also mentally manipulate some of the ‘patches’). I also have mental coprolalia, palilalia and echolalia.

The second half of the video shows me doing the same process mentally and with eye movements and my nose. Sometimes the tics are part of the complex tic and sometimes they are just simple tics on their own, but these look the same (but feel different when I do them), so you can’t tell them apart by watching. Please also note that this is when it’s at it’s worst. I won’t usually do all that eye flickering/rolling!

As there are overlaps between compulsions and tics, complex tics such as these may be misunderstood and thought to be compulsions. The tics shown in the video is actually a complex tic due to its spontenaity and involuntariness. Basically, its a series of automatic or semi-automatic movements based on urges rather than reasons or obsessions. (I’ll try to cover the differences in another video).

Confused by all that? Me too!

http://en.wikipedia.org/wiki/Sensory_phenomena
http://cat.inist.fr/?aModele=afficheN&cpsidt=2975440

If you have any (polite, respectful, genuine, mature) questions, please go ahead and ask :)

Oh, and plese excuse the pyjamas!

Duration : 0:2:16

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Tics while on the computer

Taking a look at some of my motor tics while on the computer.

My tics are worse than usual at the moment and are worse when I’m on my own anyway (or at least, I don’t need to hide them as much), so they’re not always this obvious/frequent.

I don’t need sympathy, this is just for education.

This is not a comedy. If you are looking for something to laugh at, please go elsewhere.

Duration : 0:2:31

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Mental tic simulation video

This is the best I can do to show what mental tics are like. They are actually extremely difficult to simulate.

- Please read and follow the instructions carefully.
- You will need the sound on at a reasonable volume. You will also need two small pieces of paper and something to write with.
- It is important to let the video load first to avoid stopping half way through.
- Although you can of course watch this as many times as you want, it will only really work once (if at all).
- Do not read the comments that other users have posted underneath the video as these may spoil what is in the video and thus make it ineffective.

I couldn’t use my current mental tics as an example because they include the F-word. Instead, I have combined mental tics from when I was about 3-5 years old with ones from around 11-17 years old (they last a long time!)

None of my videos are for comedy or sympathy, although this particular one is partly for empathy.

If you have any (polite, respectful, genuine, mature) questions, please go ahead and ask and I’ll do my best to try and answer them for you :)

Duration : 0:5:33

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It is well known that seeing or hearing tics can set off tics in someone else with a tic disorder. Here’s a short clip of me an hour after watching Teenage Tourette Camp.

Three hours later, as I write this, I’m still ticcing more than usual.

My tics were slightly worse just before setting the camera up to film.

Yes, I do have Tourette’s syndrome. I tic anyway, but seeing people tic makes me worse.

Note added 22/11/08: This video has by far the most comments of all my videos so far. It also seems to attract the most brainless, negative comments including ones telling me the tics are fake. Let me iterate that I do have Tourette syndrome (as diagnosed by four neurologists) and that the condition is notorious for being temporarily exacerbated by seeing or hearing other tics. This is why a whole room of people with Tourette syndrome is not a good idea as, temporarily, the people will pick up on each other’s tics and their own will worsen. Please also note that this video is and has always been placed in the category ‘education’ and not ‘comedy’. For those who think I am stupid, I actually have an above average IQ.

This is not for sympathy, just for education.

This is not a comedy. If you are looking for something to laugh at, please go elsewhere.

If you have any (polite, respectful, genuine, mature) questions, please go ahead and ask and I’ll do my best to try and answer them for you :)

PS That pink milk on the desk has no artificial flavourings or colours! :)

Duration : 0:0:47

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