This has nothing to do with self injury…..aside from the fact that I forgot my arm warmer! oh my goodness. But im covering some parts with annotations and most is not that noticeable because most of my scars on my arm are older and pale. If you think you will be triggered, dont watch this. But it barely shows.

This is about showing what my movement disorder is and what I deal with.
There is so little information out there about this kind of movement. It’s probably a tic disorder, but my movements dont look like the ones that are commonly described. I wish I could find a video with movements of this nature…..so…this is a video for those like me….this is a video about it for them

My appointment is Friday. Cross your fingers for me.

I’m feeling really self conscious right now. I know I look like a defective freak. ;(

I’ve talked about this in another video. Here is the link if you wanna see
http://www.youtube.com/watch?v=j98duqGvpL0

Duration : 0:5:35

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Technorati Tags: acute, chicken, defective, Disorder, dyskinesia, dystonia, freak, funky, Idranktheseawater, movement, neurological, neurologist, neurology, NOS, not, otherwise, severe, specified, tic, Tics, tourettes

I am 19 years old and have been having movement problems every since I was 2. They have gradually gotten worse over the years. I have been diagnosed with Essential Tremor, Motor Tic Disorder, and Dystonia. I feel as though none of these cover what I experience. I believe it looks more like myoclonus. I do have a tremor not evident in this video though. If anyone has any suggestions as to what this may be please feel free to comment.

Duration : 0:4:15

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Technorati Tags: acute, chicken, defective, Disorder, dyskinesia, dystonia, freak, funky, Idranktheseawater, movement, neurological, neurologist, neurology, NOS, not, otherwise, severe, specified, tic, Tics, tourettes

A NEW APPROACH TO BLEPHAROSPASM

Problems diagnosed with a combination of Blepharospasm and Myasthenia in 2004/5

TREATMENTFirst Stage

Starting early 2005 Mestinon 60g twice a day proved very helpful in preventing eyelid drooping e.g. gentle closures but violent blinking sudden closures continued. My own conclusion was that Mestinon was helping Myasthenia but Blepharospasm increased.

TREATMENTSecond Stage

Botox injection at Charing Cross Hospital March 05 result total eye closures, facial twitch continued and even jaw locking. I continued with Mestinon but due to severity of closures, neither myself or doctors could say for certain what the problem was.

TREATMENTThird Stage

Later that year (2005) I was fortunate enough to obtain an appointment with a specialist at the Western Eye Hospital who immediately diagnosed Blepharospasm as main cause with some secondary signs of Myasthenia.

Botox was prescribed and administered and this time the results were excellent i.e. within two days, eyes were normal except for some minor drooping of eyelids when I was tired. I continued with these Botox injections until May 2009 (every eight weeks or so) but in time they became less effective particularly in the days before the next injection. Also in 2008 I underwent Ptosis surgery to ist with prevention of eye lid drooping.

After the first successful injection in 2005 I discontinued the Mestinon which in retrospect was a mistake as it was for Myasthenia and not Blepharospasm.

TREATMENTFourth Stage

July 3 2009, just before my Botox injections I was experiencing violent eye closures, headaches and symptoms ociated with my jaw joint. I consulted Dr Patrick Grossmann BDS D.Orth RCS who, after a series of tests, proposed fitting me with an appliance to reposition my lower jaw. Dr Grossmann explained that there was emerging evidence that a splint might alleviate Blepharospasm and he was willing to give it a try.
This device was fitted on July 7th and I am delighted to report that the effect of the splint was immediate i.e. violent eye closures and facial twitches stopped. Whereas I had to be guided by my wife through the London streets to my appointment with Dr Grossmann I walked freely on my own back to the Tube station even though there was torrential rain and thunderstorm.

The next day, July 8, I played three sets of tennis, singles again no violent eye closures, no multiple blinks but some partial gentle eyelid drooping, no worse than after the most successful Botox injection, but then I realised this was the Myasthenia.

I stress I can now watch T.V, drive and work without blinking and have no headaches.

The next stage is to contact my GP for Mestinon for Myasthenia.

If others wish to explore whether such a device might help them, they can contact Dr Patrick Grossmann on 0207 637 4969 and at :

patrick@patrickgrossmann.com www.patrickgrossmann.com

Duration : 0:2:29

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I recently over did things. I am now experiencing more problems with my walking and have had to curtail how far I walk and how often I do it. This videos shows some of my gait problems. The strange thing is I have noticed that if I walk backwards the muscles in my legs do not seem to spasm and I can walk freely. May be this proves it is all in my head? Or it may indicate that I have a form of action induced dystonia?

Duration : 0:5:53

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Technorati Tags: acute, chicken, defective, Disorder, dyskinesia, dystonia, freak, funky, Idranktheseawater, movement, neurological, neurologist, neurology, NOS, not, otherwise, severe, specified, tic, Tics, tourettes