My 14 year old daughter was recently told that she has a tic disorder by her psychiatrist (she has OCD). My husband also has a tic disorder and a little OCD. The psychiatrist told us that it is a long process in getting a diagnosis, and there is no point in getting one. I agree with the psychiatrist because we know that it’s a tic disorder, so there’s no point in knowing the name of it. It’s not like it would help her in any way.
But my daughter really wants to get a diagnosis so she would be able to tell people what exactly it is that she has if they see her ticcing, so she can go to support groups and conferences and possibly go to a camp for people with the same condition. I really don’t see the point in it. These are her symptoms, blinking, eye rolling, back bending, throwing hair over her head, scrunching up her face, sniffing, eye squinting, leg shaking, coughing, neck jerking, eyebrow raising, sucking in and out stomach shoulder blade moving, nose twitching, ear moving, jaw moving, making a clicking noise in her throat and a small high pitched hiccup-like sound. She thinks it’s tourette syndrome, but I think tourette syndrome is more severe than this. I honestly think there is not much point in getting a diagnosis. What are your opinions?
How long did it take to get the diagnosis?
Were there any tests of any kind involved?
Tourette’s is not more severe than that. You’re probably thinking of the people who shout profanities randomly. That only happens in a small percentage of people with Tourette’s. With that many types of tics, there’s a good chance she does have Tourette’s. Is she on anxiety meds for her OCD? If not, that may help calm her Tourette’s, as well. They often go hand in hand. My ten year old cousin has Tourette’s, ODD, and ADHD, and he can’t take anything for ADHD because it makes the tics worse.
Here’s some info for you:
Tourette syndrome involves both motor tics, which are uncontrolled body movements, and vocal or phonic tics, which are outbursts of sound. Some motor tics are simple and involve only one muscle group. Simple motor tics, such as rapid eye blinking, shoulder shrugging, or nose twitching, are usually the first signs of Tourette syndrome. Motor tics also can be complex (involving multiple muscle groups), such as jumping, kicking, hopping, or spinning.
Vocal tics, which generally appear later than motor tics, also can be simple or complex. Simple vocal tics include grunting, sniffing, and throat-clearing. More complex vocalizations include repeating the words of others (echolalia) or repeating one’s own words (palilalia). The involuntary use of inappropriate or obscene language (coprolalia) is possible, but uncommon, among people with Tourette syndrome.
In addition to frequent tics, people with Tourette syndrome are at risk for associated problems including attention deficit hyperactivity disorder (ADHD), obsessive-compulsive disorder (OCD), anxiety, depression, and problems with sleep.
Although there is no single test that can tell whether a person has TS, tests such as MRI (magnetic resonance imaging), CT (computed tomography), EEG (electroencephalogram) and blood tests can help rule out other diseases which may have symptoms similar to TS. If these tests are negative for other disorders and the person has had chronic, multiple motor or vocal tics for over a year, a clinical diagnosis of TS may be made.
It is known that TS is inherited in a dominant mode, meaning if a father has TS, he has a 50% chance of giving the TS gene to his child. If that sounds simple, it gets more complicated. Even if the child gets the TS gene, the child may have milder symptoms than the father or even no symptoms at all, even though the child has the abnormal gene.
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My daughter was just diagnosed with a motor tic. She only tics when she is excited about about something. We were told to record her. In this video she is on playhousedisney.com making a slide for the characters to go down. As they go down the slide she really starts tic-ing, when they are done, she will make another slide and again start tic-ing when they go down. At the end and anytime she tics, if we ask her something she will always stop and talk but 9 times out of 10 will go back to the ticing. Over the past month she has also started jumping as she does this.
There’s some examples of my echolalia near the end of this at 3:56 and 4:35 What’s weird is that I don’t even speak spanish, yet my tics mimic it perfectly.
“Tic”
first video of me talking about my tics
Weisenheimer78http://gdata.youtube.com/feeds/api/users/weisenheimer78Peopletic disorder, tourettes?Tic? Spasm?
Here is a video of me explaning why I hate the phone and why you usually won’t reach me unless my text of some sort.
This video is about Obsessive Compulsive Disorder. Obsessive Compulsive Disorder is a neurogical disorder that causes unwanted obsessions (thoughts) and compulsions (behaviors). Many other comorbid disorders of Obsessive Compulsive Disorder are Tourette Syndrome, learning disablities such as dyslexia, depression, eating disorders, etc.